Good news from the neurologist today... maybe (pity party inside)

clutchdust

Millionaire Playboy
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Mar 27, 2008
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I haven't really mentioned this before, because who cares, right? But I've had a mysterious, sometimes debilitating, condition on the right side of my head. I've had some truly bazaar symptoms like my hair hurts, shaving hurts my teeth, my lower lip is numb, my ear drum feels like it's being stabbed with a pin, metallic taste and the right side of my tongue is numb. Plus I've had a headache, the same headache, since March of last year.
I'm a VA guy since this all started while I was self employed. And most of you who are VA can vouch for this, but the service is really pretty good, but don't be in a rush.
So after several visits with my primary, the ENT and a osteo specialist. Over the last few months we've been chiseling away at this by process of elimination and have more or less concluded it is some kind of neuralgia. So today I finally saw a neurologist. Fortunately it doesn't look like it's trigeminal neuragia, one of the most painful conditions known to man. What we now suspect is glossopharyngeal(?) neuralgia. Not as bad as TN, but it's no party. So she has bumped me up on the one drug that has diminished the effects. I have to get an (another) MRI next month to rule out a couple other possibilities, like cancer or an aneurysm. The bad part is that the diagnosis is a process of elimination because the cause is seldom large enough to show up on imaging or blood tests. If this proves to be the case I may be on anti seizure medicine....well....?
 
:shocking::ill: Sorry you not well there Clutch, hell of a mess....

I guess most of us have lesser pains/symptoms, but no one lives without them for long....

take care man....best of luck to you.....

:beer:
 
I go to sleep with a headache every night and in the morning she is still there...congrats on the good news, my headache isn`t going away any time soon...
 
Thanks everybody.
RVR, I understand. That's kind of how this started. I was miserable for about the first 4 months. No OTC pain reliever could touch it. The doc finally prescribed something serious and that helped a bunch. Been on oxy or percocets ever since. Now that we're narrowing down the cause and I'm being treated with the right stuff, I don't have to hit the narcotics so much. I feel better already, not as muted, but the pain is still there, just tolerable.
 
Man, I wish you all the best in the diagnosis! I'm kind of in the same boat in one way. About a month ago I had all the symptoms of a heart attack and the next day a small stroke. The cardiologist has run all kind of tests and can't find anything wrong. I'm wearing a heart monitor now to see if anything shows up. Right now I'm scheming to see how I can get that hood you have for sale. I live in N. Tx. Art
 

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